Last month the St. Louis metabolic clinic put together a PKU cooking class. Keith and I had been to a couple in previous years but this was the first time for Charlie. He was super excited.
The class was partially sponsored by BioMarin, a pharmaceutical company specializing in "orphan" drugs for rare disorders. They make the drug Kuvan which is written on all of the aprons. While we ate we listened to a presentation by an adult with PKU. It was a treat to listen to a successful adult with PKU. Her story and the stories of other PKU adults leading "normal" lives while taking complete responsibility of their diet, inspires me to help Charlie become like that. So when he leaned over to me near the end of her presentation and whispered that he wants to be like her when he grows up, it made my heart smile.