On March 1st I reached a huge milestone...
3 MONTHS WITH NO SEIZURES!!!
It was also DOUBLE my previous record!
Shortly after that I had one minor seizure (ugh!) but if you don't include that, I have now gone...
6 1/2 MONTHS!!!
The freedom I feel is wonderful. Free from fear of when the next one will happen. Will I be on my bike, holding a knife, in a store, will it be a strong one, etc, etc, etc? The sensation I would get before each one was exactly like my arm muscle was a little fatigued. I really cannot tell the difference between the two sensations.
I remember having a panic attack rock climbing for the first time post the beginning of the seizures. My arms got a bit fatigued and I was frantically trying to tell Keith to lower me down. I was terrified of having a seizure dangling from a rope against a hard climbing wall. Sadly, it was a long time before I dared go climbing again. It was just too much. Once I realized that I was going a long time without a seizure however, I focused on working my arm and grip muscles so that they were fatigued almost every day. For about the first month I had to suppress the fear that for 6 years I had had every time my arm muscle felt fatigued; the fear that a seizure was beginning. I wanted to retrain my brain to no longer associate that sensation with seizures. Every time I felt it for almost two months I would repeat in my mind I would repeat to myself that it was not a seizure, just tired muscles. "This is not a seizure Katie, just tired muscles." And it worked. I can't guarantee that I have had my last seizure ever, but I love living free of them now.
Oh, and I can drive now!!! :) OH YEAH!!!